Why On Earth Do You Bother?
“Why on earth do you bother? You don't even get paid.†This is something which has been said to me a lot this past year when I talk about my Activist role, and it has meant that I have actually sat back and considered my motivation, thought about what I think being an Activist can achieve, and equally importantly what it does for me.
The Activist in me was always there to fight the cause for the underdog. Ever since I was a child I'd be defending someone or something against something which I perceived as unfair. I struggle to accept injustice and quite simply it is my motivation to be an Active player within both RETHINK and the Time to Change initiative tackling what I know to be shocking ' Injustice', overwhelming 'Unfairness' and startling 'Inequality' encountered by people experiencing issues around their Mental wellbeing.
It shouldn't surprise you to find that Activism has aided my own Recovery. It's empowering, it's 'standing up', it's 'saying no' and it's 'defying' the very powerful systems which would see the people with a diagnosis similar to mine stigmatised and discriminated without legal recourse.
Being involved with some of the Time to Change events was exciting, we were out there talking about our experiences with members of the public, politicians and the press. I've never been great a speaking to groups ,but now it's as normal as putting on my lipstick. Having my photograph taken was something I hated, now it's something I hardly notice happening. My confidence levels have soared because I feel as if I am part of change, a very minor player but with a significant part in a revolution within Mental Health.
RETHINK's political campaigns, in particular 'The Bradley Review Into Diversion Within The Criminal Justice System', stimulated my passion for fair treatment for Mentally Disordered Offenders (a nasty term, but all the same a legal term which encompasses both learning disabilities and mental health). Being consulted at the onset of the process was a powerful way for me to find closure around my own experience of the Criminal Justice System, both as a serving Police Officer and as a Mentally Disordered Offender. It was both a hugely important political process, but a personally healing experience. It has aided my Recovery! I no longer wear my experiences as a blanket of shame.
Being part of RETHINK's Public Affairs Committee and their Regional Committee involves consultation with Service Users and Carers, we are actively part of the decision making process for the organisation. For me this has improved my confidence, I feel valued and I have never left thinking that my voice has not been heard (and I do leave my megaphone at home!), or that my opinions do not count in any way! I've met some amazing people, heard stories which have left me feeling shocked to the core, and listened to people bravely speak up to Politicians, telling harrowing stories, which has left me feeling both humbled and honoured to have met them. Everyone I've met will tell you something similar to me, that they take the risk, they put their best foot forward, and they speak out because they believe that change is necessary but more importantly actually possible.
Time to Change, and RETHINK needs Activists, they need YOU and I like to think they still need ME. Together we can sew the seeds of change, develop and encourage “fellowship†(which is a quality valued so much by Carer's and Service User's using RETHINK services.) As part of the bigger picture – we really can, by our actions, stories and input become part of a Mental Health revolution which may well see future generations of people who receive a diagnosis of a Mental Illness treated as equally and normally by society, as if they'd been told they had diabetes or arthritis.







Comments
Why on earth do you bother
I also came to the site via the tv ad. As an individual who has been diagnosed with schizoid affective disorder I've been in and out of hospitals for over 9 years, but now I have a life that is probably getting more normal. Well, it is if you compare that to my turbulent childhood, teens and then the years I was in hospital. I met my soul mate husband in 2002 and life improved since then. I now have a beautiful 3 year old daughter and a son on the way in November. Thanks to medication and help from other mental health services my life has improved considerably.
There are still those people who judge you though. When people ask what work do I do and I have to explain that my husband cares for me and I'm disabled I sometimes wish I had a physical disability. It would be far easier to explain so I usually trtry not to say anything but, sometimes that is difficult because it seems to be something people like to ask when they meet you for the first time. I cannot count the amount of times I have felt ashamed through having a mental health problem. Or the judgement that people think that I or my husband should be out working. It's great that there is a place like this finally set up to help change people's attitudes.
I've always wanted to be an actress and I have the talent, but the performing arts world is filled with people who don't understand and telling potential employers usually get's you denied for the job straight away. That's why I was pleased when I saw people like Ruby Wax standing up for mental health change as well. There is so much ignorance in this world yet we live in the 20th century so you would think people have more understanding, but it seems to be all right if you have a physical problem.
I've rabitted on for a bit now so I'll end it with just saying thanks to all who are helping change the attitudes towards people with mental health problems. Keep up the good work!
MENT'AL = feeble-minded, mad .
CAN SOMEBODY CHANGE THE NAME OF MENTAL ILLNESS TO SOMETHING BETTER.....???
LOOK IT UP IN THE DICTIONARY!
I BEG TO DIFFER WITH THE COLLINS ENGLISH DICTIONARY BUT IVE GOT A "MENTAL" HEALTH
PROBLEM BUT IM NOT "WEAK"!!!
IM NOT "INSIPID" !!!
I THINK A NEW NAME WOULD BE GOOD FOR EVERYBODY.
SOMETHING LIKE " BRAIN FLUCTUATION SYNDROME "
SOUND'S MUCH COOLER!
New Name for Mental Illness
Here in the U.S. the National Alliance on Mental Illness (NAMI) encourages individuals and their family members to use the term "brain-based biological illness". It lets people know it is a serious illness that involves the brain and somehow calling it a "biological illness" takes away that elusive nature that the term "mental illness" generates (in my opinion).
William Styron, in his memoir Darkness Visible, also discussed his distaste for the term "mental illness" and suggested "brainstorm" although he acknowledged that that term was already being used for something altogether different.
But calling it a biological
But calling it a biological disorder reinforces the myth that mental illness is a biological condition and that medicating people is the only method of treatment. I agree that Mental Illness has a huge stigma now and changing it to something else might be a good idea I think ignoring the social aspects of mental health in its name is not the way forward. It also allows pharmaceutical companies to tighten their grip on mental health treatment.
memory
Is ephilepsy an illness although better i still have that sad flag hanging over me i feel noone should be persucuted because of their past and should be given a fresh chance although trying to avoid any problems bookkeeping was my solution but who will have me know at nearly 45yrs then if allowances can be made i was working in practise as a bookkeeper so know about many other things i complete voluntary work in southend but that does not use my mental ability i know how to use a computer i have accounting knowledge and have used sage and quickbooks but my short term memory hinders my approach can i get round this.
new job???
Im hoping to return to work "normality" after nearly 3 years off due to anxiety and depression, i too am very wary and sceptical about someone taking me on, i feel that i am ready for work but could do with a little more support when applying for jobs. also im plagued with the "what ifs" i think this website is great and hope to find the extra support that im looking for from it. many thanks
Returning to work
I had a break down in 2005, and at the time I was a Facilities Manager, a 24/7 job. I didn't know I'd had a break down, I just thought the world was against me, and would have been happy to end it all, which I nearly did. I walked out of the company and straight into a taxi, who managed to stop just as I fell to the ground, and not hurt, but wooly headed jumped up and ran off to the train station were I stood on the platform waiting for the train, and went to jump in front of a train, but a man grabbed me, and all hell broke out and the next thing I knew I was sitting in a hospital. I'm not on medication now, and I have been trying to return to work for the last two years, and now we have the resession to add to the problem. I have filled in so many forms, and sent out my cv to God knows how many companies, and have only had three interviews. The agencies are not worth bothering with unless you don't tell them you have/had a problem. If you get an interview, you have to really think about questions you may be asked, and things may be going well then they add an odd question that you did think about, and if like me your mind goes blank, and you've blown it.
I wish you luck on your quest, and hope you get that job! All you need like me is a chance to show them you can do it!
Lucky in my job
I work for a local authority and I have to say I am really lucky they have been really supportive. when I had one of my 'episodes' I did cause quite a stir and everything about my 'illness' came out, I was off sick for about 8 months, took an overdose at work, went missing and the police found my work phone and starting to phone all my colleague at 2am etc etc. But at least they know now about my problems and I am covered by DDA and I am in a Union. Of course some people at work still don't know how to approach me and not sure what to say and sure I get paranoid about what people are saying and sometimes I feel embarrassed and ashamed of what I am. But for me its being at work at the moment that keeps me going, without it, unfortunately, I don't have much else. After years of denial and 'I'm fine' I have decided to be more open and approachable about my illness (diagnosis still waivering between bipolar and personality disorder- but I don't think that matters). I hope you find all the support you are looking for. I think its very dependant on where you live (not much here in Norfolk to my knowledge) and even if there is stuff happening its sheer luck that you hear about it.
Good website - I stumbled across it through the BBC website. Spot of luck! I hope I can get more involved with things now I've found this.
It can be done!
I have bi-polar disorder and have struggled with work. I am now in part time employment and have a sympathetic employer. Although it's hard to find, the right job can be really supportive - you just need to try and not beat yourself up if you find there is a time when you feel you are becoming unwell.
Good luck
I wish you all the best with your new job. I understand how you feel I have been in the same situation. Just be honest from the start andd join a union.
RE:why on earth do you bother?
I came on this site after seeing the advertising on tv for the reasons above. There does need to be change, every time i apply for a job its like well... do i say ive had a mental health problem or not? I know that if i do state that i have a mental health problem i will be less likely to get the job.
The thing is when i was at my worst it was work, the routine and normality that got me through, it gave me something to get up for. People don't understand work can very often help people with mental health problems.
I took it too far and worked too much, i took on 2 jobs because it gave me something else to think about and concentrate on rather than my problems. It wasnt until somebody said to me, "When do you get time to do something for yourself, to relax etc,?" that i realised i was avoiding relaxing and having time to myself because that was when i thought about the problems i had.
I had to find a hobby, something to do, something i enjoyed. I enjoy physical activity most, it releases natural chemicals that make you feel happy too. The gym is good and even though i havent got a job at the moment i scrimp and save so i can keep my membership at the gym, it helps me de-stress and there's a pool and steam room there which i love to go to if i dont feel like doing a big work out. I also love dancing, to begin with i didnt like socialising and talking to people i was scared i might say the wrong thing, but now i love a good night out and most of the time im the designated driver. I dont mind though because i get to dance and see my friends. At first they judged me a little when i told them i had a problem but now they're fine with it and understand more.
I want to say to anybody that does have a problem that if you feel that you arent getting help, please dont give in, go back to the doctors ring the helplines, you will get help eventually. I was put on various types of medication that gave me all sorts of weird side effects, but im now on the right medication and my moods have levelled out, and i feel the best i have in about 4 years
I agree with Quinonostante Mental illness should be treated as fairly and as equally as someone with arthritis or diabetes, its ok for them to work and they monitor there illness with medication, diet, etc, so why isnt it ok for those with mental illness? I believe alot of employers would find that those with mental illness wanting to work for them will find that they are more determined, better at time keeping and will concentrate more and be more willing to stay and do overtime/extra work than those without.
This is just my personal experience, its not meant to be right or wrong.
Trying to get back to work
The trouble is that for some jobs you dp have to be honest - I was medically retired from nursing on 2005 due to long standing depression and, having recovered enough to return to paid employment by autumn 2008 I applied for a position within the NHS where you have to declare these things. I was accepted following an interview and exam stage but a couple of months later when human resources & occupational health had spoken tohether about my (confidential health form) and concocted pre-loaded questions for the OH doctor, I was sent to see him - not asked the questions, but rejected anyway. Being covered by the DDA I have appealed and they have vigarously rejected my claims and the whole thing is now heading to a tribunal, when all I wanted was to return to work and be like everyone else.I especially agree with the previous comment from another person: I would just like to be able to answer that common question asked at a first meeting: "Hi, what do you do?" I was going to be able to say again, I work for the NHS, but not now..... all because I have a mental health problem. Why is that fair?
why on earth do you bother?
Well probably like yourself i lied to gain employment it is a complicated affair which surrounds a daughter and a motorcycle accident but i agree that employment makes a big difference that noone understands if in work you dont think about your past but in my experience being told when work should be completed then told i was all wrong and made to work late to complete work else i would forget it brought on too much stress how could i get round this and please dont humour me as i have tried very hard