Sarah, October 24, 2018

A picture of Sarah

What it took for me to recover from schizophrenia was having people who believed in me and who did not give up on me. Their belief and love for me encouraged me to believe in myself, so I could have the patience to heal slowly over several years, with the help of steady, continued medical treatment. Their love and confidence in me gave me a reason and the strength to try and endure the emotional pain and social stigma of having schizophrenia.

If you have a friend, family member, or colleague with schizophrenia, the worst thing you can do is give up on them and shut them out of your life. No one wants to give up more on a person with schizophrenia than themselves. Healing from schizophrenia is possible, but it does take a community of love, support and understanding, along with proper medical care.

My parents were never embarrassed by me and always believed that I would overcome my illness. Most importantly, they never judged me for a second or thought the real Sarah was gone. My husband of one year is also instrumental in my emotional recovery and the aftermath of having a disease like schizophrenia. I have been symptom free since I met my husband, but he has been my rock during a time in my life where I am dealing with a lot of residual feelings of anger and shame for what happened to me. I have shared everything about my illness and previous medical history with him, and he supports my desire to tell my story.

As a schizophrenic, the reactions of people who reject you or who treat you in a stigmatised way can haunt you. I have lived in fear of saying schizophrenia out loud and what people might think of me. It was easy for me to think the same way others do about my disease and agree with the majority about a controversial topic. It was easy in the past to turn on myself, tell myself it was my fault I was ill. I mistakenly think I’m empowered to both judge and fix myself, to be like everyone else. For years I felt like a human anomaly. I had never met, and still haven’t met, anyone else with schizophrenia, so I desperately wanted to be like everyone else in the world, as if I was some special unique case that the world had never seen before

I felt so crushed and deflated, even more so when a lifetime friend judged me and broke ties with me because I’d been hospitalized with psychosis and she had witnessed part of it. After my first psychosis, she increasingly minimized contact and started not inviting me to important life events. I finally called her out on it and told her I thought she was excluding me because I had experienced mental illness, and she flatly said, "I can't help you." I disagree with this statement. She did have the power to support me while I healed and make a difference in my life. Instead, I felt ashamed of myself, like I was an embarrassment or outcast in the eyes of someone I had known my entire life. Because she judged me, it triggered self-judgement.

One thing I know now is that if someone drops a person because they have schizophrenia, then they weren’t a true friend to begin with. I know that runs contrary to social stigma and norms. After all we’re conditioned to think that every person with psychotic tendencies is more likely to act aggressively towards other people. And that schizophrenia is a character flaw that makes someone a second-class citizen who everyone should be wary of and keep at arm’s length. Having a friend or family member with a mental illness shouldn’t be embarrassing.

I encourage anyone reading this blog to conquer these gut reactions and do your best to understand and have compassion for people with schizophrenia – this could be life-saving for someone trying to recover and move on from this stifling disease.

Don’t give up on someone in your life just because they have this condition.

Share your story

Too many people are made to feel ashamed. By sharing your story, you can help spread knowledge and perspective about mental illness that could change the way people think about it.


Sarah's journey

Sarah, you are such a gifted writer. Your story will give so many people hope and an understanding of mental illness to others. Thank you so much for sharing your journey.

Love and hope is the cure

after reading tour story i am more hopefull that one day i and you and we all will be able to live a normal life, a life full of love, a life without fear, a life without shame and a life full of peace and happiness

You are an inspirational - Well said!

My son is in hospital and treatment resistant. 8 months he has been in physchosis. I see a glimmer of the person I knew hiding behind the awful symptoms. I take the good and bad days and take them as they come. I have supported him through this tragic illness which developed two weeks before his 16th birthday. As a family we have not been given any support but I realise how much support we need to give him. It is difficult being a caregiver and watching thr torture of anybodies mind. But, like your parents I agree that we wont give up hope and give him all the support we possibly can because we cannot imagine how scared he must be inside. We see the fear in his eyes and the drifting in and out of reality. I pray for insight to come through and hopefully like you he can get on the road to recovery. Right now things are not good as all medications have failed including the so-called wonder drug Clozapine.....which nearly killed him with the awful side effects and rebound supersensitivity psychosis. #hatephyschosis #findacure. Good luck to Sarah I wish many more would share their inspirational stories like yours. Thank you for sharing your story. Your #friend she was not a real friend and won't be a loss in your life. True friends stick by your side and support through the good times and bad times in your life.

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